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The new year blues were getting me down, the words in my mind swirling around - brown, frown, ground, flat, crushed, bruised and battered...my recovery from the traumas of 2004 was, oh so, slow for me and EaZyD. But, ya know, how much worrying can a person do? Time to consider the upsides:
- a great result for my first relapse, in March, when I rang Dr M (my consultant) and was in hospital in less than a week! Can you believe it? They want to minimise in-hospital stays – an MRSA/cost thing. Fantastic. I am finally a day patient; oh, bliss, I came home every night.
- more of a result is that as I got such early treatment, I am better now than last October, post steroids, and managed to get in our car with more ease than since before September 2004 relapse
- God 2, Prof C, surprised me by postponing any treatment decisions in favour of more investigations. It felt like a stay of execution, so EaZyD and I celebrated with yet more champagne... I am going to have to kick this habit - just not anytime soon!
OK, that’s it with the upsides, it’s all just too good, isn’t it? Back to the reality of my second relapse of the year,
‘So, its just the use of your hands you’ve lost this time is it?’
The JD suggested that this was not particularly serious and perhaps I didn’t understand how severe the side effects of high dose steroids were. He thought I should just have a few more tests, go away and get used to life with no hands. I paused, looked at him, hard and long, and no, I could not let this go.
‘Have you actually bothered to read my file notes?'
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